Skip to main content

I get pissed off by a tweet


This is by no means the worst thing I've read about autism:
Nevertheless, it struck a nerve, and pushed me over the line from 'maybe I should write a blog' to 'yep, definitely need to start writing a blog'.

Over the past year, I've found myself increasingly assertive in opposing misconceptions and lies about autism wherever I find them. At the heart of these, so often, is the idea of autism as a disease - one you can catch, one you can perhaps cure. When this rears its head, you'll often find scientifically-literate folk fighting back - and I'm glad they do, it's important work. However, there's a personal perspective that I always want to add, something very simple yet so often overlooked:

I am not a disease.

Look at that tweet. It's not shouty and crazy, it's not full of woo. In a very level and apparently considered (if scientifically nonsensical) manner, it presents autism as a dreadful condition that one can catch from a particular diet. Moreover, autism is a terrible thing, although SIDS is even worse: if we rank terrible things that can happen to a child, death is at the top, but autism is just behind.

I am not a tragic mistake.

I was born autistic, I will die autistic. I am autistic, just as I'm tall, blue-eyed, balding, tending towards overweightness. I didn't develop some horrible condition from drinking milk or being vaccinated or standing outside under a waxing gibbous moon whilst the owl cried thrice. I'm just like you, dear reader, except that my brain doesn't work in the way that society expects brains to work (yet it nonetheless works well, in its own way).

I am not to be feared. 

Autism is not some horrendous nightmare. It is not the bogeyman with which you should seek to scare parents away from whatever it is you've set your mind against. If you are ever inclined to say something about causes or cures of autism, please, remember: you are talking about human beings, with feelings (also, frankly, don't say whatever you were going to say, not without peer-reviewed evidence). If autism is the bogeyman, I am the bogeyman, we autistic folk are all the bogeyman. We are demonised, we are less than human.

This is not a road that any of us should be walking down. It ends in a very bad place.

I'll finish with a couple more tweets. First, my reply to the above:

And finally, a very wise response by James Wong (follow him, he's great, I plan to make one of his indoor ponds) on the subject of 'causes' of autism:



Comments

Popular posts from this blog

SMARTIES, in tubes, like they used to be

I loved Smarties as a kid. Of course I did. Every kid did. They used to come in a tube, like this:   And the little plastic cap had a letter on it - educational sweets! But now, they come in, oh, something else, I don't know, I'm old. Anyway, for those outside the UK and Ireland and wherever else they may be sold, Smarties are like M&Ms. Just a bit bigger, and a bit better. Small chocolate sweets with a coloured shell, that's the point here. Imagine a bowl of them. A big bowl. No, a vat. Lots of them, all poured in together. Every one is a different aspect of a human - a personality trait, a skill, a strength, a weakness. This one means you enjoy swimming, this one that you hate noisy parties, this one that you're good at sculpting, this one that you can't stand the taste of prawns. And so on. You're going to take a mug, scoop up a mugful of Smarties, and all those distinct human details, they will come together to make up you . Everyone gets the...

The Mask (but not the awful sequel)

This month, there is a #TakeTheMaskOff social media campaign, about the role of masking in autistic lives (and the harm it can cause), so I thought I'd write a quick post about my own personal experience. A quick definition, in case anyone needs: masking, or camouflaging, is affecting learned social behaviours in order to not appear autistic. Its importance as a social and medical issue has been significantly raised recently, following an extensive and thorough study by Sarah Cassidy, Louise Bradley, Rebecca Shaw and Simon Baron-Cohen that assessed risk factors leading to suicide amongst autistic adults ( https://molecularautism.biomedcentral.com/articles/10.1186/s13229-018-0226-4 ). As I've said in previous posts, I was diagnosed aged 36. Like, I'm sure, many other late-diagnosed autistic adults, the diagnosis didn't come as a shock, didn't sneak up out of the blue after decades of thinking I was 'normal'. I had never been terribly good at fitting in, w...

Red, gold and blue

You're an explorer! An explorer from way back, in the days when Europeans knew little of the wider world, and set sail for who-knows-what. You spend days, weeks, nothing to see but the endless sea, and then- ho! As I believe such explorers used to explain. Ho! Land ahoy! And all that. Suddenly, your empty world is now full of this land, your thoughts now devoted to a place that, until a moment ago, you didn't know existed. A bit of the map gets coloured in. The point of this rambling is that, for the first eighteen months after my diagnosis, I looked out and I saw the endless sea. What I didn't see were other autistic adults, only parents speaking for autistic children (or parents speaking for themselves, in many cases). I felt alone, out there in the broad and unbroken ocean. Until, a few weeks back, I found my New World, the #ActuallyAutistic community on social media. (I have no plans to conquer it and kill the indigenous inhabitants, though.) This community is a very ...